Saturday 18 August 2018
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29 days ago

Chicago Protest Demands Informed Consent for Intersex Patients

Expand Intersex activist Sean Saifa Wall protests outside Lurie Children’s Hospital in Chicago for Intersex Awareness Day on October 26, 2017. © 2018 Love and Struggle Photos, courtesy of Pidgeon Pagonis This afternoon in Chicago, the Intersex Justice Project (IJP), a US-based advocacy group, is staging a protest outside the Ann Robert H. Lurie Children’s Hospital, asking the institution to stop allowing medically unnecessary surgeries on intersex children when they are too young to consent. Intersex people – whose chromosomes, gonads, and sex organs don’t match what is generally considered typically “female” or “male” – make up nearly two percent of the human population. One reason why we hear so little about intersex people is that doctors often perform surgery on them when they are still infants to make their bodies appear more unambiguously “female” or “male.” Some physicians argue that these irreversible and medically unnecessary interventions make it easier for kids to grow up “normal” and avoid bullying or harassment. They argue that surgery is a humane intervention for children who might otherwise struggle socially. But there is no evidence the surgeries deliver on that promise of “fitting in,” and the results are often catastrophic—including nerve damage, incontinence, and sterilization. Also, it is rare that urgent health considerations require immediate, irreversible intervention. That’s why medically unnecessary surgeries on intersex children have been condemned by the World Health Organization, three former US surgeons-general, Physicians for Human Rights, United Nations human rights experts, and pediatrics bodies. But the Lurie hospital’s website — like several other hospitals —advertises surgeries to “reduce the size of a large clitoris” and “help correct girls’ anatomy.” Today’s protest will be live-streamed on Facebook and Instagram by Pidgeon Pagonis, one of IJP’s

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